Today I met with 2 doctors in what I would call an impromptu care conference. Both doctors spoke to me informally and were very generous with their time despite extremely busy schedules.
We discussed Mabry's damaged septum and agreed that it is very disappointing that the damage occurred. They did not point to a nursing error for this outcome but did mention that Mabry's poor outcome has 'raised awareness' of this issue at the CG NICU. We agreed this is not just a cosmetic issues but one that can cause sleep, breathing, and sinus problems. There is some hope that her septum will partially regenerate over time, as happened for a different baby in a similar situation here 3 years ago.
I value the relationship with these doctors as they are consulting us on almost all decisions. After much discussion I have instructed them to hold off on a second round of steroids until they can identify an 'inflection point' to maximize results. This decision was made as a team and we all believe it is in Alex's best interest from a risk/reward standpoint.
I was able to hold Alex for the first time which was nice for the first few minutes. Then he began a major desat into the 60"s and needed his oxygen boosted from 38 to 59. At that time I expressed that I wanted to end the holding session and we put him back. Shortly afterwards his oxygen level stabilized.
My prayer is that God would decide to start moving Alex toward health each day and eliminate any difficult decisions for us in regards to his treatment. We trust that God will guide Alex and our family in a way that is pleasing to Him.
Thank you for your prayers and support.
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