In part 3 of the Care Conference the medical team explained potential outcomes. This was difficult to hear, but we praying that Alex and Mabry will not develop disabilities. Documented outcomes for children in similar situations have included a wide range from healthy to mild, moderate, or severe disabilities. Whatever happens we will do everything we can to give them the help and support that they might need.
The medical team explained to us that Alex and Mabry are at high risk for developmental issues later in life.
Cognitive and behavioral examples given were various degrees of ADHD, opposition defiant disorder, or intellectual disabilities.
Vision and Hearing Issues could range from minor issues to blindness or deafness.
Muscular issues could include problems developing balance or cerebral palsy.
Alex and Mabry will be followed up on at Cardinal Glennon for at least 2 years to monitor these potential issues.
In the meantime Mom and Dad will try to help them with Skin-to-Skin holding and talking to and reading to the babies. The footprints program will arrange a family photo.
I want to take a moment to again thank everyone who has supported us in any way including cards, gifts, and prayers. This was an extremely difficult post to publish, but with the support of all the great people in our life who are reading this blog, I know that Alex and Mabry will have the resources they need to succeed in life.
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